The Alzheimer caregiver is often referred to as the hidden, or second, victim of AD. The physical results of caregiving stress can be fatigue, stomach problems, headaches and difficulty sleeping. The emotional stress of caregiving can cause depression, tension, anger, guilt, loss of self-esteem and feelings of being overwhelmed. In addition, many caregivers feel that their feelings are not understood. Unfortunately, most caregivers do not recognize the association between the stress of caregiving and their physical and emotional symptoms. It is critical that you do not neglect your physical and mental health. This section explains some of the physical and emotional changes you may be experiencing as well as ways to cope.

Further reading:

"The Loss of Self: A Family Resource for the Care of Alzheimer's Disease and Related Disorders" by Donna Cohen, Ph.D., and Carl Eisdorfer, Ph.D., M.D. N.Y.; W.W.Norton & Co. 1986. A general resource on Alzheimer's disease that is practical and readable not only for family members and Alzheimer's victims but also for health care professionals.

"The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer's Disease and Related Dementing Illnesses" by Nancy L. Mace and Peter V. Rabins, M.D. Baltimore: Johns Hopkins University Press, 1991. The classic family guide to home care.

"Understanding Alzheimer's Disease" by Miriam K. Aronson, Ed.D. (ed). N.Y.; Scribners, 1988.* A text providing practical strategies for successfully coping with AD.

"Unplanned Journey: Understanding the Itinerary – Reflections of a Caregiver" by Susan G. Miller, M.S. 1999

Sources for this section: Adapted from "Caregiver Stress: I Don't Have Time to Take Care of Myself", "Caregiver Tips – Dealing with Denial" (adapted from the newsletter of the Cleveland Chapter of the Alzheimer's Association) , "Especially for the Alzheimer's Caregiver", Orange County Chapter of the Alzheimer's Association; "Helping Children and Teens Understand Alzheimer's Disease", Alzheimer's Disease and Related Disorders Association, Inc.

© Alzheimer's Disease and Related Disorders Association, Inc.