Early Stage Programs and Services

	A variety of programs and services are available to people with MCI and early dementia. Please call the contact person listed below each program for more information and to schedule an interview.
	Disclaimer;  This information is provided as a resource. It is not intended as an endorsement of any one product or provider.

Programs

Books Of Interest

A View From Within: Living With Early Onset Alzheimer’s
Author: Thaddeus M. Raushi, Ph.D.
The author shares his inner thoughts and feelings on celebrating life while living with Alzheimer’s disease at a young age. Alzheimer’s Association, Northeastern New York Chapter, Albany, New York, 2001. Tel. 518-438-2217.

Alzheimer’s from the Inside Out
Author: Richard Taylor
This collection of essays offers a glimpse into the world of the author, an individual who is living with Alzheimer’s disease. Health Professions Press, Baltimore, Maryland, 2007.
www.healthpropress.com.

Speaking Our Minds
Author: Lisa Snyder, LCSW
Seven individuals share their thoughts and feelings about living with Alzheimer’s disease. Copies of the book are available for purchase on www.amazon.com.

Still Alice
Author: Lisa Genova
This candid and powerful novel portrays a woman’s life after receiving a diagnosis of young-onset Alzheimer’s disease. Pocket Books, New York, NY, 2009.
1-800-288-4677 or www.simonsays.com and www.amazon.com.

Services

For Caregivers and Professionals

Alzheimer’s Early Stages: First Steps in Caring and Treatment
by Daniel Kuhn, MSW, Hunter House Publishers, Alameda, CA, 2003.
1-800-266-5592 or www.hunterhouse.com.
A guide for family members and friends that focuses on early-stage issues.

Partial View: An Alzheimer's Journal
by Cary Smith Henderson, Southern Methodist University Press, Dallas, TX, 1998.
Contact the New York City Chapter to obtain information about ordering a copy.
A sensitively crafted portrayal of what it is like to have Alzheimer's disease.

Still Alice
by Lisa Genova, Pocket Books, New York, NY, 2009.
1-800-288-4677 or www.simonsays.com and www.amazon.com.
This candid and powerful novel portrays a woman’s life after receiving a diagnosis of younger-onset Alzheimer’s disease.

The Forgetting: Portrait of an Epidemic
by David Shenk, Doubleday, New York, NY, 2001
www.doubleday.com.
A compelling look into the history, science, politics, and psychology of
Alzheimer’s disease.

At the Crossroads: Family Conversations about Alzheimer ’s Disease,
Dementia, and Driving.
Provided by The Hartford Financial Services Group, Inc and the MIT AgeLab.
For free copies of this brochure, write to:

The Hartford At the Crossroads
200 Executive Boulevard
Southington, CT 06489
or contact www.thehartford.com/alzheimers.

Booklets (Alzheimer’s Association Publications)*

“If you have Alzheimer’s disease: what you should know, what you
should do.”

“Early-onset Alzheimer’s: I’m too young to have Alzheimer’s disease.”

“10 warning signs of Alzheimer’s disease.”

*These free booklets can be obtained by contacting the Alzheimer’s Association at 800-272-3900 or www.alz.org/alzheimers_disease_publications.asp.

Newsletters

Perspectives
Quarterly publication that addresses the interests, concerns, and reflections of individuals living with early-stage AD or other dementias.

Contact: Lisa Snyder, LCSW
               Shiley-Marcos Alzheimer’s Disease Research Center
               University of California (San Diego)
               Phone: 858-622-5800
               Available free by email: lsnyder@ucsd.edu

Websites

Ageless Design
www.agelessdesign.com
Ageless Design has a daily news service about articles, press releases, and newswires relating to dementia. Sign up through their website.

Alzheimer’s Association Message Boards/Chat Rooms
www.alz.org/messageboards
24 hour/7 day support community for people with Alzheimer’s, family caregivers,
and professional caregivers.

Alzheimer’s Disease Education and Referral (ADEAR) Center
www.alzheimers.org
Sponsored by the National Institute on Aging (NIA), this site offers news on
research and clinical trials.

AlzStore
www.alzstore.com
An online store featuring products designed for people with all degrees of
dementia impairment.

Clinical Trials
www.clinicaltrials.gov
The U.S. National Institutes of Health developed this website to provide patients, family members, and members of the public with current information about clinical research studies.

Dementia Advocacy and Support Network
www.dasninternational.org
Includes information on advocacy, research, other dementias, and a chat room for people with early-stage Alzheimer’s disease. This resource is run primarily by people with Alzheimer’s or another type of dementia.

DementiaUSA
www.dementiausa.com
Grassroots approach to understanding Alzheimer’s and other dementias by individuals with a diagnosis. Includes advocacy information, a speakers list, and access to chat with other people with a diagnosis.

Websites In Other Countries

Alzheimer’s Australia
www.alzheimers.org.au
Information and fact sheets that can be downloaded for people with dementia.

Alzheimer’s Disease International
www.alz.co.uk
For information about services in other countries.

Alzheimer’s Society, United Kingdom
www.alzheimer’s.org.uk
The primary Alzheimer’s resource in the UK for people with dementia and their caregivers. Contains sections with comments by people with AD and families.

Canadian Alzheimer Society
www.alzheimer.ca
This web site has a very helpful section devoted to people with Alzheimer’s disease.

Information about free events in
New York City

A website with listings of free things to do around New York City, including concerts, theatre, tours, and talks among other things. A monthly subscription of $2.95 (as of November 2008) is needed to access events information.
www.clubfreetime.com/new_york.asp