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Alzheimer's Association, New York City Chapter

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Fall 2006 Edition
A Family Caregiver Story
President's Message
From the
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Ken Howard
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I am delighted to report that for our fiscal year ending June 30, 2006, we have raised $6 million – a recordbreaking achievement for the New York City Chapter, representing a 15% increase over fiscal year 2005. We have you, our friends and supporters, to thank for making this Chapter milestone possible.

I would like to take a moment to reflect on what $6 million means, both in terms of our history and our future. We call New York City the “Capital of the World,” the place where the concept of a national Alzheimer’s Association began. In the late 1970s, a group of dedicated New Yorkers, spearheaded by Lonnie Wollin, a caregiver, and Dr. Robert Katzman, then head of Neurology at Albert Einstein Medical Center, began to address the critical issues facing the Alzheimer’s community. In 1978, the Alzheimer’s Disease Society, headquartered in NYC, with a mission national in scope, was founded and incorporated, with Mr. Wollin serving as president.

Shortly thereafter, Dr. Robert Butler, then head of the National Institutes of Health (NIH) convened the Alzheimer’s Disease Society and six grass-roots Alzheimer’s organizations nationwide. These seven groups provided the leadership for establishing, in 1980, our National Alzheimer’s Association. The Alzheimer’s Disease Society, which pre-dated National, became the NYC Chapter, and a founding member of the Association. The Chapter, reincorporated in 1985, started with an operating budget of $150,000.

With funds privately raised, the NYC Chapter began to make its presence known – by building public awareness for Alzheimer’s disease, holding support groups and education programs, and, through advocacy, drawing attention to the issues to change legislation. New York City is where it all began. And, through these many years, the NYC Chapter has sustained its voice and leadership.

The NYC Chapter has much to be proud of. For example, our own Jed Levine was the creator of the forerunner of the Alzheimer’s Association Safe Return® program, now a nationwide identification and registration program. The Chapter spearheaded programs for persons with early stage AD, including an annual Early Stage Forum, designated a White House Conference on Aging Event in 2005. This year, we distributed a DVD and Early Stage Conference Workbook to eighty area Chapters throughout the country as well as to professionals in the field, hoping that they will find it easier to hold their own local conferences and events. These two programs are representative of the work we strive to sustain and grow in order to address the complex needs of those with AD, their family members and their caregivers.

Which brings me to the present. Later this year, the Chapter takes up residence on the 4th floor of 360 Lexington Avenue, enabling us to dramatically build capacity and grow our programs to better serve the NYC community.

Our move gives us the opportunity to recognize donors who make a significant gift and wish to name elements of our new space, including our new Conference Room, Training Center, Support Group Rooms, 24-hour Helpline Call Center, Volunteer Center and Care Consultation Room. Below is a schematic rendering of our new offices. I look forward to telling you more about this exciting project in our next Newsletter. As always, if you would like further information about our programs and how you can help to support our work, or if you would like to know more about Naming Opportunities in our new offices, please call me directly at 646.744.2905 or cberne@alznyc.org. We thank you for all you do for us – it truly makes the difference.


— Carol Berne
Vice President for Leadership Giving

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