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Alzheimer's Association, New York City Chapter

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COMMUNITY BUILDING –
A TEEN’S IMPACT ON THE FIGHT AGAINST ALZHEIMER’S

In our busy lives as teenagers, it is easy to ignore the impact Alzheimer’s disease has on millions of people, including teens like myself. An estimated five million Americans are currently afflicted with the disease, and that number is expected to rise to 7.7 million by 2030, and could climb to 16 million by 2050. Alzheimer’s patients come from all walks of life, ethnicities, educational backgrounds and income levels. They are my family, and yours. As a teenager, it is hard to imagine your own parent with Alzheimer’s, but it is possible.

As I have become more involved in Alzheimer’s advocacy, I have come to understand the tremendous importance of community-building in fighting this disease. For one, social isolation appears to have a meaningful impact on how people get Alzheimer’s. Many studies have suggested that social isolation is linked to dementia. Most recently, a large study looked at the impact of social connections on dementia in the lives of over 800 elderly patients over a period of four years. The study found that the risk of developing Alzheimer’s increased by 51% for each point on the loneliness score. The study demonstrates a clear link between less social activity and a higher risk of Alzheimer’s and leads to the possibility that improving social connections may have a positive impact on mental health.

As the number of elderly rises, families deeply affected by Alzheimer’s will increasingly become more common. The community then becomes a source of strength as we work together to solve a widespread problem, one that requires a significant commitment of resources. Since this disease will increasingly impact so many, the impact of each dollar funding research will become magnified. It is important to be the voice of tomorrow’s Alzheimer’s community today by raising awareness of the need for new technologies as well as generating funding for medical progress. As I have learned, teens have a special role to play in raising awareness and helping raise funding to fight the disease.

As part of the younger generation, it is easy for teens to believe their actions are insignificant compared to the work of older adults; however,we cannot let age discourage us. Alzheimer’s affects us, too, and we should do all we can to raise awareness and be proactive. My Grandmother has Alzheimer’s, but I never believed I had the capacity to make a difference. It is exactly this mindset that we teenagers must overcome. After much reflection, I concluded that I could either sympathetically watch my Grandmother deteriorate from the sidelines, or I could be proactive. I decided to join the fight and sought an opportunity to volunteer at the Alzheimer’s Association, NYC Chapter. I worked in their office over the summer. I also formed a team of teens at my school to join me at the NYC Memory Walk 2007. The Walk was inspiring—the t-shirts, the posters, the smiles on each person’s face: everything was geared toward finding a cure. And my team raised over $500! I was inspired to make more of an effort to raise money. I channeled my love of photography into something productive and held a photo show in Brooklyn, all proceeds going to the Alzheimer’s Association. I raised $860 for the cause! It is remarkable how much productivity can result from combining two projects you care about.

Raising money is critical, but it is important not to forget the most fundamental ways of coping with the disease. Spend a little extra time with your grandparents, hug whomever you may know with the illness, even if they are so far into the disease that they do not realize who you are. Teens can go to nursing homes, help aunts or uncles or even other caregivers of Alzheimer’s patients. Community-building opportunities are right in front of us everyday. It’s important to realize that your small efforts can make a sufferer’s day.

One day this summer I was in the car with my Grandmother and I put on a Frank Sinatra tune. She knew every word despite the fact that she cannot even remember my Grandfather’s name. “Grandma!” I said, “You know all the words!” “Of course I do!” she responded. At that moment, I felt great optimism. If tiny miracles like these can happen, then we teens can make even bigger miracles happen. It is never too early or too late to join the fight against this disease, and as teens, the role we play can be meaningful.

— Brynn Sullivan Wallner

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