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Alzheimer's Association, New York City Chapter

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The Importance Of Early Diagnosis

We at the Alzheimer’s Association, along with our colleagues in the scientific, medical and legal communities, are major proponents of early diagnosis. The reasons for this are many.

There are numerous conditions and diseases that can cause the symptoms of dementia. Dementia is a symptom, an umbrella term that means significant memory loss along with losses in at least one other cognitive domain such as reason, judgment or communication. It’s important to know the cause of these symptoms to ensure appropriate treatment. Some of these diseases/conditions are reversible, i.e.,with the proper diagnosis and treatment the symptoms of memory loss, etc. disappear and the person goes on to live a normal life. Drug interactions and thyroid disease are cases in point.

If the cause of the dementia symptoms is Alzheimer’s disease (AD), the treatment can begin at this early stage when some of the medications for AD may be most effective. The person with dementia and the caregiver can begin to learn about the disease and gather information about the resources available to them throughout the course of the disease.

The earlier the diagnosis is made, the more time there is to plan for the future, and to do this planning when the person with dementia (PWD) is still able to participate. Concerns such as who will make the healthcare decisions when the PWD is no longer able to make them for himself and what are the PWD’s wishes regarding available treatment measures now and as the disease progresses can be addressed. Also, this would be the time when plans can be put in place as to who is going to handle the PWD’s finances, and to explore the various options to cover the cost of care.

There’s a host of clinical trials being conducted at the Alzheimer’s Disease Centers here in NYC and around the country. Early diagnosis gives the PWD the opportunity to choose to participate in a drug study or another kind of research that may be of help to him or to others in the future.

It is no longer true that AD can only be diagnosed on autopsy. Today, experts estimate that a skilled physician can diagnose AD with more than 90 percent accuracy.

Our annual MemoryWalk is a major event with the purpose of raising awareness about Alzheimer’s disease and other dementias with a view towards promoting diagnosis and treatment. Another way that the NYC Chapter offers public awareness and thus promotes early diagnosis is through our Speakers Bureau, and through our community education efforts. If you are interested in having a presentation by our Speakers Bureau at your senior center, club, church or other community organizations, please call Sarah Presser, Speakers Bureau Coordinator at 646-744-2952 or by e-mail at spresser@alznyc.org.

Through the Helpline and the Web site, you can also get information about local attorneys who specialize in elder law. The Helpline, the Web site and this Newsletter also have information about the Legal & Financial Education Meetings that the NYC Chapter hosts three times a month. At these meetings, caregivers are given information about the laws governing the delegation of healthcare and financial decision making.

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