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Groups, Programs, and More Information  


Early Stage Programs and Services

   
In New York City, there are a variety of programs and services available to people with MCI and early dementia. Please contact us for more information.
 
 

Disclaimer;  This information is provided as a resource. It is not intended as an endorsement of any one product or provider.

Books Of Interest
 

Living Your Best With Early Stage Alzheimer’s: An Essential Guide
Author: Lisa Snyder, MSW, LCSW
A practical guide on coping with the diagnosis, effectively managing symptoms, finding meaningful activities, planning for the future, maintaining hope and humor, participating in research, and much more. This book provides invaluable wisdom and tips from people with Alzheimer’s and is a must-read for individuals with early Alzheimer’s and their caregivers.
Sunrise River Press, North Branch, Minnesota
Copies of the book are available by contacting Sunrise River Press
(phone: 651-277-1400 or www.sunriseriverpress.com) or
at www.amazon.com.

 

Alzheimer’s from the Inside Out
Author: Richard Taylor
This collection of essays offers a glimpse into the world of the author, an individual who is living with Alzheimer’s disease. Health Professions Press, Baltimore, Maryland, 2007.
www.healthpropress.com.

 

Speaking Our Minds: What It's Like to Have Alzheimer's,
Revised Edition

Author: Lisa Snyder, LCSW
Seven individuals share their thoughts and feelings about living with Alzheimer’s disease. Copies of the book are available for purchase on www.amazon.com.

 

Still Alice
Author: Lisa Genova
This candid and powerful novel portrays a woman’s life after receiving a diagnosis of young-onset Alzheimer’s disease. Pocket Books, New York, NY, 2009.
1-800-288-4677 or www.simonsays.com and www.amazon.com.

 

 

Services

AARP Money Management Program - Bill Payer Program
A volunteer service that provides their assistance to older adults with limited income who need help organizing paperwork and paying bills.
CONTACT: Amanda Leis, LCSW
phone: 212-398-6565 ext. 230
   
   
Journey for a Day
Specializes in brain stimulation, in-home therapeutic recreation and geriatric care management.
CONTACT: Toni Musto, MPH or Stacey Zaslow-Cook, LMSW
phone: 917-583-8182
   
   
Out with a Friend
A companion service in which a trained eldercare professional will accompany your loved one to their favorite social activities including movies, museums, sporting events, and dinners.
CONTACT: Darlene Niman
phone: 917-864-7713
   
   

Care Partners

Alzheimer’s Early Stages: First Steps for Family, Friends, and Caregivers
by Daniel Kuhn, MSW, Hunter House Publishers, Alameda, CA, 2003.
1-800-266-5592 or www.hunterhouse.com.
A guide for family members and friends that focuses on early-stage issues.
Order Online

 

Still Alice
by Lisa Genova, Pocket Books, New York, NY, 2009.
1-800-288-4677 or www.simonsays.com and www.amazon.com.
This candid and powerful novel portrays a woman’s life after receiving a diagnosis of younger-onset Alzheimer’s disease.

 

The Forgetting: Portrait of an Epidemic
by David Shenk, Doubleday, New York, NY, 2001
www.doubleday.com.
A compelling look into the history, science, politics, and psychology of
Alzheimer’s disease.

 

At the Crossroads: Family Conversations about Alzheimer ’s Disease,
Dementia, and Driving.

Provided by The Hartford Financial Services Group, Inc and the MIT AgeLab.
For free copies of this brochure, write to:

The Hartford At the Crossroads
200 Executive Boulevard
Southington, CT 06489
or contact www.thehartford.com/alzheimers.

 

Newsletters

Perspectives
Quarterly publication that addresses the interests, concerns, and reflections of individuals living with early-stage AD or other dementias.

Contact: Lisa Snyder, LCSW
               Shiley-Marcos Alzheimer’s Disease Research Center
               University of California (San Diego)
               Phone: 858-622-5800
               Available free by email: lsnyder@ucsd.edu

 

 

Websites

Ageless Design
www.agelessdesign.com
Ageless Design has a daily news service about articles, press releases, and newswires relating to dementia. Sign up through their website.

 

Alzheimer’s Association Message Boards/Chat Rooms
www.alz.org/messageboards
24 hour/7 day support community for people with Alzheimer’s, family caregivers,
and professional caregivers.

 

Alzheimer’s Disease Education and Referral (ADEAR) Center
www.alzheimers.org
Sponsored by the National Institute on Aging (NIA), this site offers news on
research and clinical trials.

 

AlzStore
www.alzstore.com
An online store featuring products designed for people with all degrees of
dementia impairment.

 

Clinical Trials
www.clinicaltrials.gov
The U.S. National Institutes of Health developed this website to provide patients, family members, and members of the public with current information about clinical research studies.

 

Dementia Advocacy and Support Network
www.dasninternational.org
Includes information on advocacy, research, other dementias, and a chat room for people with early-stage Alzheimer’s disease. This resource is run primarily by people with Alzheimer’s or another type of dementia.

 

DementiaUSA
www.dementiausa.com
Grassroots approach to understanding Alzheimer’s and other dementias by individuals with a diagnosis. Includes advocacy information, a speakers list, and access to chat with other people with a diagnosis.

 

 

Websites In Other Countries

 

Alzheimer’s Australia
www.alzheimers.org.au
Information and fact sheets that can be downloaded for people with dementia.

Alzheimer’s Disease International
www.alz.co.uk
For information about services in other countries.

Alzheimer’s Society, United Kingdom
www.alzheimer’s.org.uk
The primary Alzheimer’s resource in the UK for people with dementia and their caregivers. Contains sections with comments by people with AD and families.

Canadian Alzheimer Society
www.alzheimer.ca
This web site has a very helpful section devoted to people with Alzheimer’s disease.


Information about free events in
New York City

A website with listings of free things to do around New York City, including concerts, theatre, tours, and talks among other things. A monthly subscription of $2.95 (as of February 2013) is needed to access events information.
www.clubfreetime.com/new_york.asp

 

The Early-Stage Web Site was made possible by a generous sponsorship from Eisai Inc. and Pfizer Inc.